Eight year old Phoenix has Infantile Neuroaxonal Dystrophy, which is a rare and degenerative disease, and relies on mum, Sarah for everything, although he can still swallow and breathe by himself.
Since 2015, Little Havens has been a place where Phoenix, Mum Sarah and big brother Rico can be together and relax.
“The moment I walked through the door at Little Havens I felt so welcomed, and I could smell the most amazing cooking,” said Sarah. “Straight away I could see how Little Havens would work for us as a family.
“We use the hospice in a way that suits us. We love being here, using the gardens for a picnic, having a swim, just the three of us. We can all relax for a while. We can just ‘be.’
“We can’t use public swimming pools because they’re too cold. We can’t really go to parks because the equipment isn’t suitable and there’s nowhere for me park close by and to change Phoenix. There’s space here at Little Havens for our extended family and friends.
“It’s a lovely environment here. There are loads of people around the dinner table. We feel part of something at Little Havens. We always look forward to coming here, whether it’s for a day stay or an overnight break. Everything Phoenix needs is here; I never have any worries.
“Phoenix loves spending time with the Care Team. I can see that he’s had a lovely time and it gives me the chance to relax and spend time with his brother Rico.
“There is nowhere else like Little Havens. We would be very isolated without the hospice. Everyone I meet who has heard of Little Havens talks about how amazing this place is.”
To find out more about how you or someone you know would benefit from the care at Little Havens, click here.
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Published in 2019
Sarah, Phoenix's mum
We always look forward to coming here, whether it’s for a day stay or an overnight break. Everything Phoenix needs is here; I never have any worries.