Jimmy is a smiley, happy toddler who loves noise and music. Following a febrile convulsion at six months old, Jimmy suffered a brain injury. Because he was deprived of oxygen during this time, consultants told the family the damage was severe and he may not be able to go home. 

The family have been visiting the Little Havens for around a year, and although they haven’t taken up the offer of overnight respite just yet, the family were – before Coronavirus – enjoying spending time together doing the activities Little Havens has to offer.

Claire, Jimmy’s mum said,  “We absolutely love Little Havens. We’re still building up to an overnight stay, so we make full use of the facilities during day stays. 

“It’s like a ‘home from home.’ A lot of the places we’ve had to visit for Jimmy’s treatment and therapies feel quite clinical, but Little Havens is warm and friendly. The children staying there are relaxed and happy, and the Care Team are always cooing over Jimmy! 

“Although Jimmy is registered blind, we have noticed that he is starting to track objects and different stimulus. Luckily, he has really good hearing so adores noisy toys, music and instruments. That’s why the Sensory Storytime sessions at Little Havens are great for us, so we’re glad we’ve been able to continue this online.”

Jimmy isn’t technically classed as ‘vulnerable’ but it would be serious if he caught the virus because a fever makes his seizures more severe. So the family is shielding at home. 

Since lockdown, Ruth our Little Havens Music Therapist has been running live sessions from her own home and recording themed videos for families who can use sensory props they may have around the house.

“For me, the Online Music Therapy is a nice start to the day. It breaks up our routine and is something different to look forward to. I get the chance to socialise a little bit, interacting with people who are in the same position as us. Even just seeing everyone else on the session makes me feel supported. 

“Jimmy loves these sessions, playing with the musical instruments and the repetition of songs. When he recognises a tune, he chuckles and laughs. He’s very responsive to this type of therapy. 

“I know that the regular respite and social support has been suspended, but Little Havens is keeping in touch with us over the phone. It’s reassuring that they’re there if we need them.” 

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Published in 2020