Edward is a happy, smiley two-year-old from Leigh-On-Sea who loves music. He has Spina Bifida and a number of other complex conditions meaning he needs round-the-clock care. Along with his twin brother George and parents Katy and Rob, he has been coming to Little Havens since earlier this year.
During Children’s Hospice Week Edward took part in his very own ‘Challenge 46’ to raise money for the hospice which supports his family. Throughout the week, 21st – 27th June, Edward completed 46 press-ups as part of his physio exercises, and so far, he has raised an amazing £2,791 to help Little Havens continue ‘Making every day count’ for families like his.
Katy, mum to two-year-old Edward said, “What some people would think is scary has become our norm. I’m using all my energy to care for Edward and make life as normal as I can for the boys, and that’s where Little Havens comes in.”
“Little Havens takes some of the worries off me, they look after Edward doing all of his medical needs as well as making sure he is having fun. This gives me time to spend with George, Edward’s twin brother, as I often feel guilty not being able to spend as much one to one time with him when I’m caring for Edward.
“The hospice is the most inclusive place I’ve ever been, they are there not just for Edward but for all of us. I never need to ask them to do anything, they know exactly how to help and care for Edward.”
The last few weeks have been a frightening time for Katy and her family as Edward has been undergoing scans and tests.
Katy continued, “If it wasn’t for knowing we have Little Havens I don’t know how we would have coped with the stress over the last few weeks, but because of them I feel like I can carry on. I know next month is going to be hard as we more scans and hospital appointments coming up. But we also have Little Havens, who invite us in, hold us tight and help us to cope.”
“We’ve only been going to Little Havens for a few months but I feel so overwhelmed at the help they have given to our family already. I feel I can never say thank you enough for the difference they are making in our lives. Edward’s ‘Challenge 46’ is his way of saying thank you to Little Havens and helping to raise money for the hospice so they can be there for other families just like ours.”
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Published in 2021
Katy, Edward's mum
Little Havens takes some of the worries off me, they look after Edward doing all of his medical needs as well as making sure he is having fun. This gives me time to spend with George, Edward’s twin brother, as I often feel guilty not being able to spend as much one to one time with him when I’m caring for Edward.